Chandler Crews, a 31-year-old woman from Maryland, has shared her life 15 years after undergoing controversial limb lengthening surgery to address her achondroplasia, a genetic condition that slows bone growth. Born with the condition, she reached a height of just 3’10” by age 16, making everyday tasks like washing her hair, driving, and using public restrooms physically challenging.
Determined to take control of her life, Crews underwent her first surgery in 2010 at the Rubin Institute for Advanced Orthopedics. The procedure, which involves cutting bones and gradually stretching them using an external frame to stimulate growth, allowed her to lengthen her legs and arms. Over the next few years, she completed additional surgeries to correct bowed legs and improve spine health. Although the operations cost nearly $2 million, most were covered by insurance because they were deemed medically necessary.
The results were transformative. Crews grew to 4’11¾”, gaining not just height but a new level of independence. “Being able to just walk up to someone and communicate with my face in the same range as their face has been the biggest game changer for me,” she said. She can now reach her head to style her hair, sit safely at the wheel while driving, and manage daily hygiene with greater ease. She describes herself as a “comfortable short,” enjoying life without the limitations her previous stature imposed.
Beyond the physical changes, Crews has used her experience to help others. She founded The Chandler Project, an advocacy group supporting people with achondroplasia. The organization raises awareness about the condition, shares research on treatments, and offers hope to families navigating its challenges. “Children have died from complications of achondroplasia. Adults have died. Living with achondroplasia is a difficult life, but it’s the only one I have,” she explained.
Reflecting on her journey, Crews emphasizes empowerment and choice. “I didn’t want to wait for the world to change to fit my needs. I wanted to take charge and change for myself and no one else,” she said. Today, she continues to inspire others, showing that even the most controversial medical decisions can transform lives.
